So I am back from Baltimore, the 5 hour drive sucks royally.
I met with Dr. Sardi first- nothing much to say except for it doesn't look great. Prognosis is worse after debulking surgery if they don't remove all the visible cancer. And they didn't. there was a lot of cancer there and it was in places they just couldn't get to or get it off. At least he took out what he could. Sucky, right? It gets better. Just wait.
Right after meeting with Dr. Sardi, I went right over to Dr. Ledakis. Get used to that name because he's a surgical oncologist... and my new favorite person. He's a huge guy- I can't wait to get a "My Oncologist can beat up your Oncologist" because it would actually be true.
Dr. Ledakis was part of my team when I had the HIPEC (that wasn't HIPEC). He took the biopsies of my cncer and tested it against different chemotherapies to see what would be effective. There are actually a couple of routes to try: The typical colon cancer treatments and a treatment against a KRAS factor... don't ask me what the hell that is, I just know that if you don't have a KRAS mutation- the cancer is vulnerable to another chemical.
Guess what? My cancer is resistant to all of them. And I have a KRAS mutation. All bad.
What does that mean? There is nothing that will definitively kick this bitch. So I begin trial and error. Ledakis said we can do Avastin treatments which may hold off the growth... maybe- hell, we don't know.
Prognosis. Few, very few make it to 5 years. But less than 5 years is better than 1.
So I am really going to have to buckle down and just do every urban legend cure out there. It's hard to transform your household into the cancer fighting kitchen. ugh.
I am going to get a hold of the doctor in Dallas doing experimental stuff with cancer vaccines and such. Plus, I am going to look into whatever clinical trials I can.
Ledakis said that if after everything- nothing is working- we may go to an old school colon cancer treatment that he repeated MANY times was very toxic. That's a next-to-last resort.
I did ask the question I put here a while back, about having signet ring cell adenocarcinoma and since that is commonly an ovarian cancer too- that maybe try an ovarian cancer regimen against it (even though mine is colon/appendix). I asked an asshole doc at OSUMC about it and he just repeadedly said "But you don't have ovarian cancer- you have colon cancer." DUH- I KNOW, YOU JERK!!! I tried to explain to him I knew that and was just wondering if that had ever been tried. He just looked at me and treated me like I was an idiot.
Dr. Ledakis 'got' what I was asking and he said "We can try whatever you want- nothing is crazy."
I like him already.
So, mostly a shit day. I wanted some good news- but I think I knew what was coming.
CT scans are the next step and a lot of calling around before starting the Avastin, if that is actually what I do.
On a beautiful note- Dr. Ledakis commented on my previous surgeries at OSUMC... saying basically that he didn't understand why any doctor would do that surgery without debulking first. And to do it twice and talk about a possible third one? Ridiculous. I think Dr. Sardi got in touch with Dr. Arnold and hopefully gave him an earful. Maybe Dr. Arnold will refrain from doing that surgery on others and start sending them to get the surgery they SHOULD have.
Kisses, Dr. Arnold. I really hope you read this and educate yourself.
I'm in decent spirits. I would rather live forever... but I'm not dying tomorrow. So yay I guess.
I can't die too soon- I still have to find my DD214 and get it on file at the courthouse for a military rites funeral.
Getting ready to die is a pain in the ass... I'd just rather not do it at all. Problem solved.