I was on the phone today with the Mercy Medical Airlift people about taking care of my next flight to Dallas.
I had to get a hold of the American Cancer Society for my ID number and such.
They asked me if I had any questions about my cancer or suggestions and so on. Well the last time I asked any questions about appendix cancer, they didn't have any answers so I didn't think they would have any new answers this time. NOT knocking on the ACS by any means really. BUT I did have a suggestion: Educate themselves about appendix cancer. There isn't even an option of appendix cancer on the ACS website. It's THAT thinking that got me in trouble in the first place. Appendix cancer is it's own cancer. Just like breast cancer or lung cancer and so on. You don't treat appendix cancer like colon cancer or you'll likely get nowhere. It's the mentality that it can be treated like colon cancer that kills appendix cancer patients. If I'd have had the right friggin' diagnosis, things would have been a LOT different. I think patients need to have the right information instead of just lumping it into a bigger category just because it's convenient.
I suggested that the ACS look into appendix cancer information and pass it on through their website.
Plus, I suggested they include more information about Lynch Syndrome.
So I've become an activist.
Appendix Cancer's Got To Go...