I spoke with Dr Chalikonda today. I think he's interested. He's done around 140 of the HIPECs. But again... a ball was dropped when I gave him my CT scans from Marietta Memorial the only scans on it was the first one I had... PRE DIAGNOSIS. Now I've had AT LEAST 5 effin' CT scans. 3 of them at Marietta Memorial. One in May of last year, one from May this year before I started FOLFIRI and one from LAST THURSDAY! The last two were not on the disc.
Did I mention that I forgot the disc at home and didn't realize it until we were an hour from home? I turned around to get them and got back to the 3 hour drive. Only to find out the disc was damn useless.
So, though he seems interested, he couldn't tell me anything like "Yes, I can treat you. We can do this, this and this." until he see some effin' scans.
What the Hell? Am I just destined to be an example of what not to do? One of those- 'If Only...' stories.
I THOUGHT Dr. Arnold WAS a specialist when he was treating me. I thought I was getting the HIPEC surgery. Hell- Doctor Goodman said plainly... "I've never heard of anyone doing that procedure." after I told him what Dr Arnold did.
Are the stars EVER going to line up for me? It's so hard to be proactive when you can't concentrate, your brain is fried, you feel like the whole world is on your shoulders and you're lost half the time. I wish I had a little birdie on my shoulder that had all the answers. "Raa, make sure all the scans are on the discs. Raa." "Raa, your surgeon sucks. Ra" "Raa...This guy is the one.. Raa." "Now gimme a damn cracker."
That's an idea.
At the PMP Bellybuttons Club page I was getting hounded by some lady who was basically calling me a liar when I told her what I'd been having done. (one reason I abandoned the site until recently.)
Anyway- it is VERY possible I will be coming out of the HIPEC surgery with a colostomy bag. Hmm, that's SUPER! Can't wait for THAT! What 34 year old woman wouldn't feel complete without a bag of poo hanging off her stomach? News just gets better and better. I'm certainly NOT putting down anyone who HAS one, but seriously- it can't be fun. That being said- choosing between death and a colostomy bag.. the choice is easy. Gimme the bag, thank you.
Dr. Chalikonda also said that the odds of getting all the tumor out after 3 surgeries aren't good. Thank you again Dr. Arnold. Oh, and that doing the Chemo infusion without removing the tumor... pointless. I don't think a chick with a simple 2 year degree in Mass Media from a community college should be cluing you in on that. Just saying.
I guess I will be the inspiration for others to do their homework. And in the meantime hope that my screwups haven't cost me years of my life.
Next for me. Dr. Sardi in Baltimore... MAKING SURE HE GETS ALL MY SCANS and all my records before I drive 5 hours to see him. I was told that he usually schedules surgeries 4 weeks out.
Of course- by now I've realized that i really don't have any questions for Dr. Sardi except for "Will you treat me?" and "when can you do it?"
Regrets, I've had a few.......