I got a call yesterday from The James Cancer Center at OSUMC. Weirdest thing- it was the Patient Relations people. (For the life of me, I can't think of what the actual department is... chemo brain) Evidently, someone there reads this blog and brought it to their attention about the delay in getting my paperwork to the Doc in Boston. They called to make sure the problem was resolved. I didn't want anyone getting in trouble, I just wanted my stuff taken care of. I was going to have to call in again for my CT discs to be mailed, but the lady I talked to said she'd take care of it and call me today. Nice.
And since they are probably reading THIS- I wanted to say that overall, my experience at OSUMC James Cancer Center was positive. I liked Dr. Arnold (and staff) I think he was very professional, but he was hesitant to give me a real prognosis which was frustrating- I do understand why he didn't though. There aren't many guidelines for my particular type of cancer, so there isn't really a true prognosis. I think he did all he could do for me. I know that the hospital doesn't do the MOAS yet and from my research- that's what I need. I especially loved the nursing staff on the 9th floor of Doan Hall. They were all wonderful. I've really only had issues with the sharing of records and with the Oncologist I saw last year- who is no longer there anyway.
So- Thank you James Cancer Center.
I am still amazed at the people who read this blog. I look on my map and see that someone in Arizona is here a lot and someone in Hungary visits often. I know there are more I am unaware of. I wonder what this blog does for those who don't know me. I wonder if it helps them get insight on how one person copes with the diagnosis because they are close to someone who has cancer and wants to better understand THEM. I wonder if someone is reading this for research. I wonder if there is a doctor reading this that is thinking to himself "I want to fix her." So curious.
Until recently, I had ZERO idea that my uncle reads this. Though I am thankful that he does because I just might have a fighting chance through some avenues that I didn't know existed.
As for me today... I am sick. Side effects from this chemo are brutal. Nausea is never ending. I taste medicine constantly, my guts are yelling at me all the time. Loudly. Soon I will give them their own air shift since they like to talk so much. I am tired and very cloudy. I feel stupid. I can't remember names, faces, conversations and such. Must really be annoying for those around me.
I'm really not as tough as I'd like to think I am.
Scars on my belly.
Never wearing bikini.
But I shaved my legs.